Zebra is what a patient is called when their disability does not fit the definition of a well understood disease. And because they are rare, they are often misunderstood and misdirected… if not dismissed altogether. One becomes trapped in a body that has betrayed them.
Patterns in ice can be fairly consistent as the liquid freezes, but when different pressures are exerted, anomalies occur. Zebras. For this fine art project, I am spending time manipulating liquid during the freezing process in an effort to highlight the rarity of disease and what that experience feels like to an individual. Pain. Powerlessness. Being shamed. Isolation. Well-meaning advice. Dismissal. Despair.