David Aparicio Fita

Photojournalist
   
Beyond the Huntington desease
Location: Vilobí d´Onyar
Nationality: Spain
Biography: David Aparicio Fita, Catalan freelance photojournalist. He started in the world of journalism in 2010, graduated in photojournalism. He currently collaborates with El Periódico de Cataluña, Diari de Girona, and for the last 7 years... MORE
Public Story
Beyond the Huntington desease
Copyright David Aparicio Fita 2022
Updated Aug 2022
Location Ronda
Topics Documentary, Editorial, Photography, Photojournalism
Summary
Huntington's disease or Huntington's chorea is a genetic disorder that causes severe degenerative and psychiatric disturbances.

A short history about Huntington Desease

Alejandro and Encarni got married in Ronda (Malaga) in August 1998. In 2005 Encarni began to suffer from Huntington's and her life changed completely. Little by little the first symptoms and the progressive discomfort appeared: lack of memory, clumsiness or erratic movements gave way to loss of speech, difficulty chewing and swallowing food, plus an endless number of appointments with specialists. The onset of depressive behaviors and social isolation combined with the inability to make decisions or solve problems have led Encarni to total dependence.
To the consequences of this painful disease must be added a very adverse social and economic context: the arrival of the crisis in Spain and the cuts in the Dependency Law, which have reduced aid by up to 80%, have left many sick people on the brink of absolute precariousness. Encarni needs comprehensive care. Her partner and her two children have to pay for it.
Encarna died of this incurable disease in 2019.

R.I.P Encarna.
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Beyond the Huntington desease by David Aparicio Fita
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