I am a freelance photographer and visual artist based in Saint-Petersburg, Russia working with National Geographic Russia, VICE UK/USA, De Volkskrant, Takie Dela, Meduza, Novaya Gazeta, others. My photographic practice primarily focuses on the...
This story is dedicated to a small family from St. Petersburg (Russia). Inna is 33 years old, and her daughter Dasha is 15. Just a few years ago, their life was completely different. Inna had a beloved man who replaced Dasha's father, she had a job as an administrator in a hospital. However, everything has changed dramatically. Inna's beloved one Sergey died of a drug abuse, and soon after that Inna became ill, she had issues with coordination and walking. Only two years later, doctors in Moscow were able to make the correct diagnosis - ALS (amyotrophic lateral sclerosis) - an incurable and progressive disease leading to complete disability of the patient and subsequent death. The disease is poorly studied and the average life expectancy is also unknown, it all depends on a patient's health. By that time, Inna could no longer walk and moved in a wheelchair. She almost lost the ability to talk. At the moment, the life of 15-year-old Dasha is completely devoted to her mother. She does all the housework, feeds her mother, helps her take a bath. She does not have the opportunity to meet friends and even attend classes at school. The girl admits that she had to grow up very early. More recently, Inna held her little daughter in her arms, now they have changed places. This family, with whom I spent more than six months filming this story, live in their own special world, finding motivation to move on day by day. This is a story about female might, the strongest love and respect.