Leslie Moreno Custodio

Photographer
   
A patient’s odyssey
Location: Peru
Nationality: Peruvian
Biography: Leslie is a photographer and reporter based in Peru. Her work explores topics from an ethnographic and a documentary perspective. She focuses on stories related to social justice, environment and identity. She is a graduated communicator with a... MORE
Private Story
A patient’s odyssey
Copyright Leslie Moreno Custodio 2024
Updated Feb 2023
Location Peru
Topics Health/Healing, Illness, Journalism, Latin America, Migration, Photography, Portrait, Social Justice, Youth



Published in La Encerrona y Somos Periodismo, along with the support of the National Press Foundation (NPF)

Diagnoses that arrive after years of no answers, a drastic impact on work and economy, and the obligation of migrating to Lima to survive illness. These are some of the main difficulties that people living with rare diseases in different areas of Peru must endure. The “diagnosis odyssey” is a term that describes how hard it is to identify a rare disease due to a lack of specialists and a scarcity of public resources. On average, a patient has to go through seventeen doctors and wait for ten years before reaching a diagnosis in Latin America. These are the stories of these citizens demanding better care from the Peruvian government.
Diagnósticos que llegan después de años sin respuesta, drásticos impactos laborales y económicos, y la obligación de migrar hacia Lima para sobrevivir a la enfermedad. Estas son algunas de las principales dificultades que viven las personas con enfermedades raras en el Perú.

La “Odisea del diagnóstico” es un término que describe lo difícil que es detectar una enfermedad rara por la falta de especialistas y escasez de recursos públicos. En promedio, un paciente tiene que pasar por 17 médicos y esperar 10 años antes de lograr un diagnóstico en América Latina. Estas son las historias de estos ciudadanos que exigen una mejor atención del gobierno peruano.
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A patient’s odyssey by Leslie Moreno Custodio
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