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Peggy Ickenroth published on CNN Photos
cnn photos
Mar 14, 2016

Rare disorder causes constant hunger


Every morning, Rick Heijnen prepares his daughter the same breakfast at the same time with the same ingredients: crackers and biscuits, cheese and applesauce, peanut butter, gingerbread, orange juice, buttermilk, water.

To change her routine could mean a major meltdown. To change her diet could be catastrophic.

Suzanne Heijnen has Prader-Willi syndrome, a genetic condition that is estimated to affect one out of 10,000 to 30,000 people. Peggy Ickenroth met Suzanne a few years ago, when she was 12, and photographed her family over a two-week period, hoping to learn more about the disease and how it affects people.

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