José Javier Delgado Esteban

Being Emily...
Location: Spain
Nationality: Spanish
Biography: I am a multi award-winning visual artist, photographer and new media developer. Throughout my early professional life in Spain I developed a strong interest in all aspects of photography, moving image, environmental, space sciences and natural... read on
Public Story
Being Emily...
Credits: josé javier delgado esteban
Updated: 01/28/16
Location: Norfolk
On the 22nd of January 2005 the non-identical twins Lorca Sebastian and Emily Carmen were born. Emily was diagnosed with Down's Syndrome the following day. As a photographer and father I started documenting Emily's life form the early times full of uncertainties to the spell-bounding progress she has made and the raw charm Emily selflessly gives any one she encounters. The images in this collection show many different aspects of living with Emily and were taken in the UK and Spain form 2005 to 2015.

Most of the images were captured with compact digital cameras, iPhones and only a handful of them with professional dslr's.

People with Down’s Syndrome are now much more part of society but there is a long way to go. I the viewer can see these images where Emily is portrayed candidly as a young girl full of dreams, aspirations, wants, needs, likes and dislike...just  like anyone else. I hope through these images we can see Emily an individual, rather than just a girl with Down’s syndrome.

Down's syndrome or Trisomy 21, is a genetic disorder caused by the presence of all or part of a third copy of chromosome 21.

By José Javier Delgado Esteban —

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