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Being Emily...
Story
Includes 13 images
Credit: José Javier Delgado Esteban via Visura
Asset ID: VA10212
Caption: Available
Copyright: © José Javier Delgado Esteban, 2024
Collection: Personal
Location: Norfolk, United Kingdom.
Topics: Black and White Children Disability Documentary Family Happiness Joy Love Personal Photography Portraiture

José Javier Delgado Esteban

Based in Spain

I am a multi award-winning visual artist, photographer and new media developer. Throughout my early professional life in Spain I developed a strong interest in all aspects of photography, moving image, environmental, space sciences and...
Also by José Javier Delgado Esteban —
A black and white picture of a just few minutes old little girl called Emily Carmen Delgado Barter, the photographer’s daughter, being wrapped up in blankets by two nurses at the old Norwich Hospital in Norfolk, the United Kingdom on 22/01/2005.

Emily was 24 hours later to be diagnosed with Down's Syndrome.

Norwich, Norfolk, East Anglia, United Kingdom. 22/01/2005.
A black and white picture of a detail of the hospital tag and hand of a little girl called Emily Carmen Delgado Barter, the photographer’s daughter, at her home in Norwich, United Kingdom on 23/01/2005.

Emily was later that day to be diagnosed with Down's Syndrome.

Norwich, Norfolk, East Anglia, United Kingdom. 22/01/2005.
A black and white picture of non-identical 6 months old twins Lorca Sebastian Delgado Barter and Emily Carmen Delgado Barter born on 22/01/2005 resting over a black background at their home in Norwich, United Kingdom on the 27th of May 2005.

Unlike her twin, Emily was diagnosed with Down’s Syndrome at the old Norwich Hospital in Norfolk.

Norwich, Norfolk, East Anglia, United Kingdom. 27/05/2005.
A black and white portrait of a 6-month-old Emily Carmen Delgado Barter, the photographer’s daughter, at her home in Norwich, the United Kingdom over a black background on 27/05/2005.

Emily was diagnosed with Down's Syndrome at birth.

Norwich, Norfolk, East Anglia, United Kingdom. 22/01/2005.
A black and white portrait of an 8-month-old Emily Carmen Delgado Barter, the photographer’s daughter, at her home in Norwich, United Kingdom with her mother Sarah Delgado Barter on 25/09/2005.

Emily was diagnosed with Down's Syndrome at birth.

For months one of the main ways of communication and development of her motor skills would be via hair pulling. If a reaction to her first hair pull was observed Emily would not let go no matter what.

Norwich, Norfolk, East Anglia, United Kingdom. 25/09/2005.
A black and white close-up of a 6-month-old Emily Carmen Delgado Barter, the photographer’s daughter, at her home in Norwich, the United Kingdom over a black background on 27/05/2005.

Emily was diagnosed with Down's Syndrome at birth.

Norwich, Norfolk, East Anglia, United Kingdom. 27/05/2005.
A black and white portrait of Emily Carmen Delgado Barter, the photographer’s daughter, at her home in Norwich, the United Kingdom over a black background on 28/01/2007.

Emily was diagnosed with Down's Syndrome at birth.

Norwich, Norfolk, East Anglia, United Kingdom. 28/01/2007.
A black and white portrait of a 5-year-old Emily Carmen Delgado Barter playing in the snow, the photographer’s daughter, at her home in Norfolk, United Kingdom on December 2009.

Emily was diagnosed with Down's Syndrome at birth.

Diss, Norfolk, East Anglia, United Kingdom. 18/12/2009.
Portrait of a 5-year-old Emily Carmen, the photographer’s daughter, at her home in Norwich, United Kingdom. This image represents all the hurdles Emily will need to overcome in her future life.

Emily was diagnosed with Down's Syndrome at birth on the 22nd of January 2005 the non-identical twin of her brother Lorca Sebastian.

As a photographer and father, I started documenting Emily's life from the early times full of uncertainties to the spell-bounding progress she has made and the raw charm Emily selflessly gives anyone she encounters.

Emily is portrayed candidly as a young girl full of dreams, aspirations, wants, needs likes and dislikes...just like anyone else.

Down's syndrome or Trisomy 21, is a genetic disorder caused by the presence of all or part of the third copy of chromosome 21.

Diss, Norfolk, United Kingdom. 04/04/2009.
A black and white portrait of a 5-year-old Emily Carmen Delgado Barter drawing while on holiday in Spain.

Emily was diagnosed with Down's Syndrome at birth.

Santander, Cantabria, Spain. 04/08/2009.
A black and white portrait of a 5-year-old Emily Carmen Delgado Barter smiling.

Emily was diagnosed with Down's Syndrome at birth.

Diss, Norfolk, United Kingdom. 21/06/2009.
A black and white portrait of a 5-year-old Emily Carmen Delgado Barter smiling.

Emily was diagnosed with Down's Syndrome at birth.

Diss, Norfolk, United Kingdom. 21/06/2009.
A black and white portrait of a 5-year-old Emily Carmen Delgado Barter looking down.

Emily was diagnosed with Down's Syndrome at birth.

Diss, Norfolk, United Kingdom. 04/06/2010.