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Peggy Ickenroth published on CNN Photos
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Mar 14, 2016

Rare disorder causes constant hunger


Every morning, Rick Heijnen prepares his daughter the same breakfast at the same time with the same ingredients: crackers and biscuits, cheese and applesauce, peanut butter, gingerbread, orange juice, buttermilk, water.

To change her routine could mean a major meltdown. To change her diet could be catastrophic.

Suzanne Heijnen has Prader-Willi syndrome, a genetic condition that is estimated to affect one out of 10,000 to 30,000 people. Peggy Ickenroth met Suzanne a few years ago, when she was 12, and photographed her family over a two-week period, hoping to learn more about the disease and how it affects people.

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